Tuberous Sclerosis and Related Links
Here is my list of sites on Tuberous Sclerosis. This used to be a very small page due to the lack of information about Tuberous Sclerosis available. Things have changed.. I am so happy to see that information about Tuberous Sclerosis is becoming easier to find.
If you have a site that is not listed or if you find that any of these links are not working, please send me E-mail at lkiczuk@title14.com and let me know.Thanks!
Table of Contents
Tuberous Sclerosis Links
My CT Scan
TSC Mailing List
Epilepsy and Neurology Links
Other Related Links
Tuberous Sclerosis Links
The NTSA homepage -The official National Tuberous Sclerosis Association Homepage. Soon to be back up and running!
OMIM Home Page -- Online Mendelian Inheritance in Man
Tuberous Sclerosis International -Includes a list of TSI Representatives from around the world.
NCGR -Genetics and Public Issues
Center For Medical Genetics
Center For The Study of Inherited & Neurological Disorders
Tuberous Sclerosis
CPMCnet -Columbia-Presbyterian Medical Center
Ethan's Tuberous Sclerosis Page -Personal TSC homepage.
Cody & Jordan's (tuberous sclerosis) Page -Lots of Tuberous Sclerosis info and Links.
Healthtouch-Health Information -there are links on this page to info about TSC.
Tuberous Sclerosis -A short description of TSC.
Report on the 3rd International Chromosome 9 Workshop.
PROFILE A - Z GENETIC CONDITIONS -Reprinted From the AGSA Newsletter with the permission of The Association of Genetic Support of Australia.
Disease: Tuberous Sclerosis - Bourneville's Disease
Yypeng's Bookmarks -Wow! Lots of medical links, lots!
Keith Hall's Tuberous Sclerosis Story
Tuberous Sclerosis -Lots of links!
My CT Scan
My CT scan -This link takes you to a full size image of my CT scan showing the TSC related calcifications.
The TSC Talk Mailing list
To subscribe to the TSC Talk Mailing List..
Just send a message to:
majordomo@title14.com
with the command:
subscribe tsctalk
in the body of the message.
Then, after you get on the list send messages directly to tsctalk@title14.com
For help subscribing to the list send email to Lisa
NEW! The TSC Talk WWWeb Site - Drop by and say hello!
For more information on Tuberous Sclerosis contact:
The National Tuberous Sclerosis Association
8181 Professional Place, Suite 110
Landover, MD 20785-2226
1-800-225-6872
E-mail ntsa@aol.com
Or in Canada:
Tuberous Sclerosis Canada Sclerose Tubereuse (TSCST)
c/o Jillian DaSilva, President
1-800-347-0252 (available Canada-wide)
jillian.dasilva@ablelink.org
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Epilepsy and Neurology Links
Epilepsy Foundation of America
Seizures and Epilepsy-Frequently Asked Questions -by James A. Whitlock, Jr..MD.
Sara's Epilepsy Page
Tammi's Homepage -Tammi's personal experiences with Epilepsy.
Epilepsy Web Page
Surgery for Epilepsy -All about surgery for Epilepsy.
Albert Einstein College of Medicine and Montefiore Medical Center
MGH Neurogenetics Home Page
Organizations Providing Epilepsy Support and Education
Neurology/Neuroscience
Medweb:Neurology -Lots of links to other medical sites, including Epilepsy and Tuberous Sclerosis sites.
Neurology Web Forum -Questions about Epilepsy and other disorders? Post them at the NeuroWebForum.
Epilepsy FAQ -Frequently Asked Questions about Epilepsy.
Department of Neurosurgery -Thomas Jefferson University. Neuro-Implant Program.
The New York Hospital Cornell Medical Center-Comprehensive Epilepsy Center
Epilepsy Surgery at the Medical College of Georgia
Simultaneous EEG and Behavioral Evaluation of Epilepsy in Individuals with Developmental Disabilities.
Comprehensive Epilepsy Center -The Epilepsy Link Page..many links to epilepsy sites!
Epilepsy Hamilton & District
EpiNet -The Epilepsy Foundation of Victoria internet presence
Epilepsy Website -Info and help with epilepsy, resources, contacts.
Le Bureau Francais de l'Epilepsie -A French Epilepsy Page.
Seizures and the Ketogenic Diet
Common Questions from Parents Regarding the Ketogenic Diet at LPCH
EEG Biofeedback Training for Epilepsy
Remediation of Nocturnal Seizures by EEG Biofeedback
Biofeedback-an introduction
Epilepsy Mailing List -In the body of the message put the command subscribe epilepsy-list Firstname Lastname (e.g., "subscribe epilepsy-list Andrew Patrick")
Usenet group: alt.support. epilepsy -A great bunch of people with one thing in common.. Epilepsy.
For more information on Epilepsy contact:
The Epilepsy Foundation of America
4351 Garden City Drive
Landover, MD 20785
1-800-EFA-4050.
E-mail efanel@capcon.net
To Table Of Contents
Yale Department of Dermatology HomePage -Dermatology Resources. Other Related Links
Wellness Interactive Network -Lots of health info here.
Attention Deficit Disorder WWW Archive
CH.A.D.D. of Bay County, Fl. -Children and Adults with Attention Deficit Disorder.
Usenet group: alt .support.attn-deficit -A support group for people affected by Attention Deficit Disorder.
Autism Resources
The Autism and Related Disorders Page
Eric Courchesne Bibliography -Autism info.
Resources for Research on Disabilities -Links to information on disabilities.
Family Connection of South Carolina -A support group for the parents of kids with disabilities.
Disability Resources from Evan Kemp Associates -Includes the tip of the month!
The Antiepileptic Drug Page -Brought to you by Washington University's Comprehensive Epilepsy Program
PharmInfoNet -a great source of info on medications.
DrugFAQs: Dilantin (Phenytoin)
Valproic Acid -Depakote,Depakene
Medical Sciences Bulletin -Lamotrogine (Lamictal)
Medical Sciences Bulletin -Gabapentin (Neurontin)
Usenet group: sci.med.pharmacy -Pharmacy and medical discussions.
Usenet group: sci.med -Medical discussions.
AACAP - The American Academy of Child & Adolescent Psychiatry Homepage facts for families.
American Psychological Association -APA Affiliated State and Provincial Psychological Associations (referral services)
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