Lisa's Tuberous Sclerosis Links

Tuberous Sclerosis and Related Links

Here is my list of sites on Tuberous Sclerosis. This used to be a very small page due to the lack of information about Tuberous Sclerosis available on the net back in 1995, when this site was created. Things have changed.. I am so happy to see that information about Tuberous Sclerosis is becoming easier to find.

If you have a suggestion for a new catagory or site, or if you find that any of these links are not working, please send me E-mail at and let me know. Thanks!

Table of Contents

Tuberous Sclerosis Links | My CT Scan/Ultrasound | Epilepsy/Neurology Links | Autism | Drug Info | Dermatology Links | Educational Issues | Books | Odds & Ends | Disability Resources | Home

Tuberous Sclerosis Links

Australasian Tuberous Sclerosis Society
GeneClinics: Tuberous Sclerosis Complex
The LAM Foundation - Lymphangioleiomyomatosis
NCGR -Genetics and Public Issues
OMIM Home Page -- Online Mendelian Inheritance in Man
Swedish TS association
Treasure Street
Tuberous Sclerosis
Tuberous Sclerosis Alliance
Tuberous Sclerosis Association (UK)
Tuberous Sclerosis Program Overview - Children's Hospital Medical Center of Cincinnati
TSCTalk - the Website makes it's return!

My CT Scan and Ultrasound

My CT scan -This link takes you to a full size image of my CT scan showing the TSC related calcifications.

My Renal Ultrasound (2001)

Epilepsy and Neurology Links

American Family Physician - Management of Seizures and Epilepsy
Comprehensive Epilepsy Center -The Epilepsy Link Page..many links to epilepsy sites!
EEG Biofeedback Training for Epilepsy
Epilepsy & Brain Mapping Program
Epilepsy Foundation
Epilepsy Foundation of New Jersey
Epilepsy Ontario
Le Bureau Francais de l'Epilepsie -A French Epilepsy Page.
Magnetic Fields Decrease Seizure Frequency In Some Patients
MGH Neurogenetics Home Page
Medscape - Neurology and Neurosurgery
Mike's Epilepsy Home Page
Update on Epilepsy - by Eric B. Geller MD
The Vagus Nerve Stimulator (NCP)- From A Patient's Point Of View

To Table Of Contents

Autism Links

Autism Society of America
National Association for Music Therapy
The Options Institute
The Tomatis Method and Autism


Cutaneous Laser Therapy
Dr. Goldberg Tucson Dermatology LASER expert
InfoDerm: Dermatology on the Web

Drug Information

Cyberonics - Patient Guide (Vagus Nerve Stimulator - VNS)
FDA APPROVES MEDICAL DEVICE FOR EPILEPSY -The vagus nerve stimulator has been approved by the FDA. July, 1997
Food and Drug Administration Home Page
Internet Mental Health - Carbamazepine (Tegretol)
Listing of Newly Approved Drug Therapies
Needy Meds -The Place to Learn About Pharmaceutical Manufacturer's Drug Assistance Programs
Topamax (Topiramate) -Approved January 1997.

Educational Issues

Connecticut Coalition for Inclusive Education
CPAC - The Connecticut Parent Advocacy Center
Corporation for Independent Living
Exceptional Parent
Family Village Individual Education Plan Resources
Interactive Metronome Learning Technology
ISER - Internet Special Education Resources
LD In Depth: Individualized Education Program
NACD - National Academy for Child Development
The Special Ed Advocate - Special Education Law
Special Education Service Agency

Books and Stuff - book store
Brainbooks - online bookstore

Odds & Ends

Canine Companions for Independence
InteliHealth - Home to John Hopkins Health Information
Mental Health Net
National Kidney Foundation
Special Child Magazine - for parents of children with special needs.
Wellness Interactive Network -Lots of health info here.

Disability Resources

Easter Seals Gateway
NAMI - The National Alliance for the Mentally Ill
NICHCY - The National Information Center for Children and Youth with Disabilities

Site Directory

Site in existance since July 31st, 1996, last updated Dec 19, 2006.

Lisa Trainor